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Palliative Care for Children: Noah's Ark Hospice

NCL Wide

Noah's Ark Children's Hospice provides holistic clinical and non-clinical support to babies, children and young people with life-limiting or life-threatening conditions, and their families.

Services include:

  • end-of-life-care
  • nursing and specialist care (short breaks)
  • creative therapies
  • specialist play
  • volunteer home support
  • family activities (children's groups, family events, parent peer-support groups, sibling groups)
  • transition support
  • perinatal support
  • care after death
  • bereavement services. 

Eligibility Criteria

Inclusions

Noah's Ark Children's Hospice accepts referrals of children in NCL between the ages of 0-19 based on the following criteria, in line with guidelines used by all children's hospices:

  • Group One
    • Life-threatening conditions for which curative treatment may fail
  • Group Two
    • Conditions where premature death is anticipated but intensive treatment may prolong life (e.g. complicated cystic fibrosis, HIV)
  • Group Three
    • Progressive conditions without curative treatment options where treatment is exclusively palliative (e.g. Battens disease, mucopolysaccharidoses)
  • Group Four
    • Conditions causing severe neurological disability leading to susceptibility of health complications and likelihood of premature death (e.g. severe cerebral palsy, multiple disabilities following brain or spinal cord injury).

How to Refer

24/7 nurse-on-call number

Urgent referrals for end-of-life-care and care after death can be discussed via the 24/7 nurse-on-call number.

EMIS form

Referral methods: Email

Complete the All Age Pan-London Specialist Palliative Care Referral Form - NCL and email to: noahs.referrals@nhs.net

Referrals can come from any source (parents, GP or hospital), as long as the child’s parent or carer has given their consent and recent clinical information from a professional is provided to support the referral decision.

Noah's Ark also accepts referrals for bereavement services for families of children who died before age 18. This includes children who were not known to Noah's Ark during their life, and we will consider referrals for children who died unexpectedly or suddenly. Bereavement support is provided up to three years following the death.

Referrals will be assessed by the Noah's Ark fortnightly multidisciplinary panel, who will consider the child’s diagnosis against the hospice's criteria. Panelists may need to speak to professionals involved in caring for the child and may contact referrers for additional information before a decision about whether the child meets these criteria is made.

Noah's Ark will write to the referrer with the team's decision, and families will be contacted within five working days of the panel decision.

Where to find the form

  • Barnet: BAR Global Documents > Referral Forms folder
  • Camden: Camden Global Documents > Children Services
  • Enfield: ENF Global Documents > Palliative Care folder
  • Haringey: HAR Global Documents > Palliative Care
  • Islington: ISL Global Documents > Palliative Care folder

Locations

The Ark

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Review date: Wednesday, 02 July 2025