Supporting people with a learning disability

NCL Wide
Under Review — this page was due to be reviewed by Thursday, 18 August 2022. The information shown here may be outdated.

As Covid-19 vaccines continue to be rolled out across NCL, more people with a learning disability, and their carers, are likely to be offered the opportunity to receive vaccination.

The following guidance may be helpful.

Consent

There is no legal requirement for consent to be in writing, however the informed consent should be recorded.

There is also no need to carry out a formal assessment of capacity if there is no reason to doubt that the person lacks capacity to consent. 

Assessing capacity

If there is reason to believe the person does not have capacity, then an assessment should be carried out.  During that assessment, steps should be taken to support the person making the decision.

The vaccine supporting consent form developed by Barnet can be used to help people with a learning disability to achieve capacity in relation to Covid-19 vaccines. 

In helping people to achieve capacity, remember to:

  • keep it simple
  • short sentences
  • do not set the bar too high.

In supporting people to achieve capacity in relation to the vaccine, the easy read guide by Mencap may be helpful. In addition, Keepsafe have compiled a series of easy read posters on Covid-19 and the vaccine.

If these steps do not succeed, then a formal record of that fact should be made and steps should be taken to work out whether the vaccine will be administered on the basis of the consent of a registered Power of Attorney/Court appointed deputy with the relevant power, or on the basis of an agreement that it is in the patient's best interests.

Best interests

The person administering the vaccine has to be satisfied that it will be in the person who lacks capacity's best interests. The process of helping to determine best interests will usually be best undertaken by those who know the patient well.

To this end, Barnet has created a best interests information gathering template to aid care providers to gather information important to help make a best interests decision. This template should be completed in advance of a vaccination appointment and shared with the person administering the vaccine. This will make any best interests decision process easier.

Guy's and St Thomas' NHS Foundation Trust

To support clinicians, professionals, carers and adults with learning disabilities, Guy's and St Thomas' NHS Foundation Trust has developed a toolkit containing:

Colleagues are asked when using the toolkit to please acknowledge the source.

Islington Learning Disabilities Partnership

Islington Learning Disabilities Partnership has created a Reasonable adjustments to the Covid-19 vaccine to consider for people with a learning disability, autism or both toolkit.


Review date: Thursday, 18 August 2022